Sometimes, it begins at birth.
A diagnosis so complex that everything changes in an instant—and the only hope lies miles from home.
Bentlee’s family is one of many who travel to St. Louis seeking life-saving care they can’t find closer to home.
Born with severe congenital heart disease, Bentlee was rushed into emergency open-heart surgery within minutes of birth. At just five days old, he endured another 10½-hour surgery. To save his life, surgeons had to stop his tiny heart and remove his thymus gland, leaving him without a functioning immune system.
Now, Bentlee requires monthly infusions at St. Louis Children’s Hospital.
For his parents, that means traveling 3½ hours from home, again and again, relying on HavenHouse St. Louis each time they return.
Hear from his mom, in her own words:
“As we planned for these trips, we realized how quickly the costs were adding up. Because of HavenHouse, we don’t have to carry that burden alone.”
That’s where HavenHouse comes in, providing affordable lodging, meals, and support so families can focus on what matters most.
Bentlee still has a long road ahead.
Because of you, his family won’t face it alone.
This Give STL Day, help provide the comfort of home.