LCC Foundation Inc

A nonprofit organization
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The LCC Foundation is dedicated to improving the lives of individuals and families affected by Leukoencephalopathy with Brain Calcifications and Cysts (LCC), also known as Labrune Syndrome—a rare, neurodegenerative condition with no known cure.

Founded by a mother after her sons’ diagnoses, our mission is to connect, support, and advocate for those navigating the challenges of LCC. We empower patients and families by fostering a supportive community, advancing research, and promoting early diagnosis and treatment pathways.

Through education, awareness campaigns, and strategic collaborations with leading researchers and medical professionals, we are working toward a future where no family faces LCC alone—and where life-changing treatments become a reality.

Together, we are turning hope into action—one step at a time.

Learn more and join our mission at https://thelccfoundation.org

Giving Activity

Mission

The mission of the LCC Foundation is to support families affected by Leukoencephalopathy with Brain Calcifications and Cysts (LCC) across the United States and globally. We strive to provide resources to aid in the battle against this rare and debilitating disease. Our focus lies in advocating for funding towards research endeavors aimed at discovering novel treatments, therapies, and ultimately a cure for LCC. Additionally, we aim to raise awareness about LCC, enhancing the chances of early diagnosis and intervention.

Organization Data

Summary

Organization name

LCC Foundation Inc

other names

LCC Foundation

Tax id (EIN)

88-1908603

Mission/Purpose

Capacity Building/Intermediary, Health & Wellness, Medical/Scientific Research

Operating Budget

Mini: $0-$50,000

Service Area

Bond County, Washington County, Warren County, St Louis County, St Louis City, St Clair County, St Charles County, Monroe County, Madison County, Lincoln County, Jersey County, Jefferson County, Franklin County, Clinton County, Calhoun County

Audiences Served

General Public, BILPOC, Teens, Children, Youth, Families, Men, Women, Veterans, Older Adults, Military, LGBTQIA+, Justice-Involved Individuals, Immigrants, Refugees, Foreign-Born Populations, People with Disabilities, First Responders

Address

105 ECKSTEIN LN
LAKE ST LOUIS, MO 63367

Phone

636-248-9930

Email

info@thelccfoundation.org

Website

https://thelccfoundation.org

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