ALS Association St. Louis Regional Chapter


Our Mission: To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

The ALS Association St. Louis Regional Chapter helps people and families manage the impact of ALS, providing individuals with the support they need to live with independence and dignity -- all while we search aggressively for treatments and a cure.

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Address: 2258 Weldon Parkway
St. Louis, MO 63146
Email: info@alsastl.org
Phone Number: 314-432-7257
ALS does not discriminate - it can strike anyone, at any age, at any time.
People diagnosed with ALS typically experience a rapid digression from a normal, healthy life to one of total paralysis, where in essence, because their brain is still intact, they become prisoners in their own body. There is no cure.

The ALS Association St. Louis Regional Chapter helps people and families manage the impact of ALS, providing individuals with the support they need to live with independence and dignity -- all while we search aggressively for a cure.

We are committed to:
Providing a robust, multidisciplinary approach to treatment of ALS. We have two clinics in our area, each with a team of doctors that can provide complete care to ALS patients - all under one roof. This multifaceted approach to care for ALS patients is scientifically proven to extend the lives of people living with ALS.

Caring for people and families living with ALS. We provide exceptional care services and the latest resources and information for people with ALS, their families and caregivers. All of our services are provided free of charge.

Serving as a public policy advocate for people with ALS. We work on a local, state and national scale to make sure policies serve the best interests of ALS patients and caregivers, to secure funding for ALS research, and to empower patients to speak out to their representatives.

Our accomplishments are made possible by the generosity of others. From the smallest donation to the largest gift, donors touch the ALS community with hope for the future.

When you donate to the ALS Association, you fund:
• In-home support - to provide temporary RELIEF to caregivers caring for a loved one with ALS.
• Medical equipment loan program - to supply items that are essential for CONNECTION and INDEPENDENCE, such as augmentive speech devices and power wheelchairs.
• Nutrition support - providing supplemental NOURISHMENT to people with ALS who can no longer swallow solid food.
• Patient, caregiver and children's counseling - to help provide families with PEACE OF MIND while coping with the far-reaching and psycho-social effects of the disease.
• Home visits - by a care service coordinator to provide COMFORT and respond to the physical and emotional needs of a family living with ALS.

The ALS Association St. Louis Regional Chapter is committed to changing lives, saving lives, and achieving our ultimate vision: a world without ALS
"My ALS has been made more bearable because of the ALS Association. Their knowledge and understanding has helped my wife and I to better deal with my diagnosis. When we got the opportunity to go to Washington DC for the public policy conference, we realized we had someone through the ALS Association who was looking out for our benefit." --- Rob R.

"I lost my wife to ALS in April 2015. She suffered for 3 1/2 years. It started with the loss of her voice and progressed to affecting her ability to walk and hold her head up. It was sad to watch such a vibrant member of the community reduced to being bed ridden. The ALS society was love and light in our family's darkest days." -- John B.