Turner Syndrome Support of St. Louis

Turner Syndrome Support of St. Louis holds an Annual Spring Picnic to help build relationships. The support group has had events in the past such as a Genetic of Turner Syndrome Presentation. The group is in contact with a horse with Turner Syndrome, which we make visits to see. Our support group has developed a Young Adult Butterfly Group for girls who have graduated high school to connect with socially. Our support group works closely with the local Turner Syndrome clinics, and has developed a Butterfly Phone Line, which is a way for newly diagnosed families of Turner Syndrome to have someone to call and ask questions to. Our members volunteer in the local Turner Syndrome clinics during the Meet and Greet by connecting parents and providing craft activities for TS girls to connect and bond. We have hosted a webinar informing people about the Coronavirus and Turner Syndrome with an open Q&A session.